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Things that I have NOT found HELPFUL:
- Doctors who leave you with NO hope, when they don’t have enough experience with ABI.
- Cranio-sacral massage – didn’t see anything much, possibly not a good therapist.
- Aricept – no results
Things that I have found HELPFUL:
Brain Injury Program Director at Bryn Mawr Rehab
Hyperbaric oxygen treatments such as at Miracle Mountain in NC.
Depends refastenable diapers - not the ones with plastic on the outside
Depends Guards inserts to provide more absorbency
Bowel Program - so that bowel movements come in the a.m. Use a laxative such as Miralax (prescription) the previous day,
and small Fleet Liquid Glycerin Suppositories laxative 7.5 ml in the am. every day Suppositories can be bought 4 to a pack
and work faster than the solid glycerin suppositories.
Keeping an updated list of doctors and medicines with you at all times to give to emergency room personnel or doctors
Keeping a copy of your guardianship papers with you for the same reason.
Keeping a daily diary, even if you don’t want to
Easier bathroom refit: I redid my bathroom by putting the bathtub on a raised platform so that the Hoyer lift would roll
under it. Also changed the regular bathtub to a regular sized whirlpool tub.
Also changed the stand of my waterbed so that the Hoyer lift would roll under the bed.
Made my own decision to have the Doctor remove the feeding tube after one year as Earl could drink by mouth what was going
down the tube.
A recumbent exercise bike works for exercise with the person in the wheelchair in front of the bike and the caregiver
on the seat with their feet on top of the patient’s feet.
Electric Bicycling Machine. Does the pedaling for you. Got ours at Walmart.
Easy Stand for standing up patients not able to stand alone: www.easystand.com
Bruno turney seat for car or van - www.bruno.com or Braun Conversion minivan.
Music of any kind.
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